Endocrine Abstracts

Background: Type 2 Diabetes Mellitus (T2DM) is increasing in prevalence in children and young people (CYP) in the United Kingdom. There is a paucity of evidence about CYP opinions of T2DM care and how it should be tailored to meet their needs. We have analysed the Parent and Patient Reported Experience Measures (PREM) survey responses specifically from patients with T2DM and their families to inform care.

Methods: The National Paediatric Diabetes Audit (NPDA) PREM survey was available online between August 2021January 2022 for all CYP under the care of paediatric diabetes services in England and Wales and their families. The data has previously been analysed collectively for all types of diabetes; however we report the analysis of data for T2DM separately.

Results: 9.2% (105/1144) of CYP living with T2DM in England and Wales, and 5.7% (65/1144) parents/carers responded to the NPDA PREM survey. The majority were aged 12-16 years (61.9%) and female (67.6%). Most CYP and parents/carers felt they had a positive relationship with their diabetes team and 87% of CYP and 95% of parents/carers would recommend their diabetes team. 76% of CYP felt happy after appointments. 78% of parents/carers felt the diabetes team was respectful of their religious and cultural beliefs. 51% of CYP felt they were given enough information to effectively manage their emotional wellbeing. 55% of CYP and 57% of parents/carers felt well prepared for transition to adult care. 38% of CYP felt that their school or college always had the necessary information to support them with their diabetes, compared to 60% of CYP with all types of diabetes. 71% of parents/carers reported that they are always kept up-to-date with new diabetes technology.

Conclusions: Overall, this analysis demonstrates that CYP and their families were satisfied with T2DM care. However, areas of less satisfaction were identified including being provided with information specific to T2DM, preparing for transition, information being provided for schools and support with emotional well-being. These aspects should be considered when planning services for CYP with T2DM to improve patient experience, which may benefit concordance and therefore long-term health outcomes.