Endocrine Abstracts

Background: The NCYPDN plan describes a care model where children, young people (CYP) and families ‘co-design their care plan during appointments’ and ‘have a say in service planning.’ RCPCH ‘Voice Matters’ notes children want clinicians to ‘better understand how we are feeling, to ensure we’re involved in our treatment and have the support we need’. Our clinic experience found some CYP were limited with input and sharing. Communication barriers included time, mood, age, neurodiversity, anxiety, shyness, language and privacy.

Aim: To create a pre-clinic CYP quiz to capture CYP needs and wants, and collate data for service planning.

Method: A ‘Hello Quiz’, picture based with simple language to maximise accessibility was created using Microsoft Forms. It was offered via QR code or iPad to CYP in the waiting room. Staff immediately viewed results online.

Results: The quiz successfully allowed us to proactively tailor clinic to the CYP’s current mood and wishes. There were 64 CYP over 12 weeks, aged <5yrs (5%), 5–10yrs (30%), 11–15yrs (39%), 16yr+(27%) 55% felt happy, 34% ok, 13% fed up, 3% angry and 2% worried. 50% felt good about their diabetes, 33% ok and 16% bad. Wellbeing support was offered: 22% either wanted (5%) or maybe wanted (17%) this; similar to NPDA psychology data (29%). Peer support and a youth worker were requested. 12% of the 11y+ CYP asked for consultation time alone. 16% of CYP wanted and 14% maybe wanted carbohydrate counting help. CYP scored the quiz 4.73/5 for ease, 4.13/5 helpfulness. Google translate was effectively used.

Conclusion: The quiz was easy and helpful, enabling CYP person centred care; hearing their voice for clinic and service planning. Our CYP want to talk about a variety of topics, and need more wellbeing support.

Future: We aim to recruit a Youth Worker for community wellbeing support, have created a Wellbeing Services leaflet, and planned a transition peer support event.