ECE2020 Audio ePoster Presentations General Endocrinology (17 abstracts)
University Hospital Birmingham, Department of Endocrinology, Queen Elizabeth Hospital, Birmingham, United Kingdom
Aim: To evaluate the current service provisions and provide action plan for improvement within the YAE service.
Methods: A friends and family questionnaire given to all patients attending the YAE service from October 2018 – January 2019. Survey questions included: whether they thought this was a good clinic for friends and family to be looked after in, what we did well and what we could do better. For YA patients transferring from children’s service, additional questions included whether: they think their transfer went smoothly, if they met a member of the adult team before transfer and they know the name of someone to contact, as well aswhat we did well and what we could do better.
Results: There were a total of 111 young adults (YA), age 16–24 years old, who completed the friends and family questionnaire. 58 (52%) were aged between 16–19, 53 (48%) had transferred from children’s services, 52 (47%) were attending for their first or second appointment. About 99 (88%) agreeda lot or a bit with the following statement ‘I would say this is a good clinic for friends & family to be looked after in if they need similar treatment or care’. They found the staff friendly and helpful. 20 YA patients made suggestions including more wide range of leaflets, to be seen by the same consultant, exercise advice, free gym membership, more information on pregnancy issues and conduct-skype appointments. For YA patients that had transferred from children’s service; 48 (90%) agree that the transfer had gone smoothly for them, 39 (74%) were aware of meeting a member of the adult team and 38 (72%) knew the name of someone to contact. 9 (17%) YA patients offered suggestions for improvements, including more support after the appointment, less confusing by speaking ‘smaller’ words and days where just young people come to clinic. YA patients highlighted issues with the appointment system.
Conclusions: This YAE service evaluation has demonstrated that the majority of YA patients are satisfied with the service and felt that transfer went smoothly. However, improvements are required to comply with national transition guidance and meet the needs of YA patients.