Endocrine Abstracts

Not another blood test !

Living as a teenager with multiple endocrine neoplasia type 1.

Brother and sister Joel (18 years) and Hope (14 years) Russell-Winter share their respective experiences of being diagnosed as teenagers with the rare condition multiple endocrine neoplasia type 1.

They believe that the needs and experiences of teenagers are sometimes forgotten during hospital testing, consultations and treatment. Their presentation would like to tell you more about their condition, how it effects them, what’s it’s like trying to come to terms with it – including how friends, girl/boy friends and other people react. They also want to let you know what has been helpful (and not so helpful!) from those professionals caring for them with the condition.