Endocrine Abstracts

Introduction: Polycystic ovary syndrome (PCOS) has a prevalence of 10–15% and is associated with metabolic and mental health consequences. There is evidence that structured education programmes improve illness perception, quality of life and the metabolic profile in other chronic conditions however evidence for structured patient education in PCOS is lacking.

We aimed to use an iterative cycle of research to develop a pragmatic educational intervention tailored for the needs of women with PCOS.

Methods: In line with the Medical Research Council’s framework for developing and evaluating complex interventions and using Bartholomew’s intervention mapping protocol we developed an education programme for women with PCOS.

Research question was explored by literature review, consultation with peers as well as qualitative patient interviews. A semi-structured topic guide was used in the interviews to assess their need and views on the education programme and its design and content. The programme was also informed by the related literature, phenotypic and outcome analysis of a large local database of women with PCOS and the evidence from education programmes in other chronic conditions such as diabetes.

Results: The developed programme was piloted in a group of women with PCOS. Their feedback was sought through a semi-structured focus group interview. Refined intervention was piloted again in a fresh patient group and their feedback was sought.

After final refinement of the programme a group of skilled health care professional with the knowledge of the underpinning philosophies and learning theories were trained to deliver this education programme.

This pilot work has resulted in a randomised Controlled trial to test its feasibility and efficacy.

Discussion: Women with PCOS are at increased risk of diabetes, cardiovascular and mental health issues and need an early lifestyle intervention. A successful outcome of our research programme will be a milestone in treatment of this condition and improving patient care especially in primary care.

Declaration of funding: Partly funded by ‘Early Career Grant’ from Society for Endocrinology

It is part of a PhD project supported by Leicester Diabetes Centre.

It is supported by the NIHR “Leicester and Loughborough Diet, Lifestyle and Physical activity Biomedical Research Unit” and Collaboration for Leadership in Applied Health Research and Care (CLAHRC).