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Endocrine Abstracts (2012) 28 MTE1

SFEBES2012 Meet the Expert Sessions (1) (9 abstracts)

Therapeutic management of adults with CAH

Wiebke Arlt


Endocrinology, University of Birmingham, Birmingham, United Kingdom.


This session will offer an opportunity to discuss the best management of adult patients with congenital adrenal hyperplasia (CAH). Although one in 5 patients with adrenal insufficiency has CAH as the underlying cause the recent UK CaHASE survey (JCE&M 2010) has shown that less than 10% of adult UK CAH patients receive endocrine specialist care. This contrasts with the need for specialist provision of care by a multi-disciplinary team that is recognised by experts in the field and requested by patients. The session will summarise key elements of the current therapeutic management in particular with a view of improving long-term health outcomes such as quality of life, fertility, bone mineral density and metabolic status.

Declaration of interest: There is no conflict of interest that could be perceived as prejudicing the impartiality of the research reported.

Funding: No specific grant from any funding agency in the public, commercial or not-for-profit sector.

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