Searchable abstracts of presentations at key conferences in endocrinology
Endocrine Abstracts (2007) 14 P502

ECE2007 Poster Presentations (1) (659 abstracts)

Endocrine tumour registry – tools for endocrine epidemiology

Corin Badiu 1 & Sorin Sava 2


1Institute of Endocrinology, Bucharest, Romania; 2Infoworld, Bucharest, Romania.


Endocrine tumour registry is a web-based system which is divided in several categories of endocrine tumours: pituitary adenomas, thyroid cancer, parathyroid tumours, adrenal and other types.

The program is intended to give epidemiological data concerning the prevalence of each type, age and sex distribution, therapy and basic results of it. The centres involved are the medical universities and expertise centres in Romania, centres in which there are enough resources to diagnose, treat and monitories treatment of various endocrine tumours.

The data entered are personal patients ID’s, tumour type, extension and complications, type of treatment and its results as tumour dimensions, and endocrine tumour markers. Thyroid cancer registry and pituitary tumour registry are subdivisions of the system.

From each centre, 2 persons dedicated to enter data in the system are designated by the system administrator, which will be located in the Institute of Endocrinology in Bucharest. The access to the site is web secured. The network started with 10 centres and will be developed afterwards using the already existent resources. An import software filter for this site was developed, which will allow dynamic recording of cases from an institutional database (in the last 5 years) towards the registry. This hardware and software infrastructure is the base of future epidemiological public health surveys in this thematic area.

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